Cure AP-4 Events
Annual Golf Tournament and Auction at The Riverton Country Club
When? September 19, 2023
Where? 1416 Highland Ave
Cinnaminson, NJ 08077
Overview: Riverton Country Club has generously agreed to host a golf tournament to benefit Cure SPG47 on September 19. A live auction will be held after the tournament. Players are welcome and corporate sponsorships are available. Click here for more information and registration!
Sixth Annual Meeting of Scientific Advisors and Families
When? October 28-29, 2022
Where? The Inn at Longwood Medical
The Fenway Room
342 Longwood Ave
Boston, MA 02115
Overview: Cure AP-4 is hosting its sixth annual meeting of scientific advisors at The Inn at Longwood Medical on October
28-29. Families affected by AP-4 related HSP and interested scientists are invited to attend the scientific meeting as well as the family event
planned for October 29. More information coming soon!!
Annual Golf Tournament and Auction at The Riverton Country Club
When? September 20, 2022
Where? 1416 Highland Ave
Cinnaminson, NJ 08077
Overview: Riverton Country Club has generously agreed to host a golf tournament to benefit Cure SPG47 on September 20. A
live auction will be held after the tournament. Players are welcome and corporate sponsorships are available. More information coming soon!!
Fifth Annual Meeting of Scientific Advisors and Families
When? October 22, 2021
Where? Virtual due to pandemic
Overview: Cure AP-4 is hosting its fifth annual meeting of scientific advisors on October
22. Families affected by AP-4 related HSP and interested scientists are invited to attend via Zoom.
Fourth Annual Meeting of Scientific Advisors and Families
When? October 22, 2020
Where? Virtual due to pandemic
Overview: Cure AP-4 is hosting its fourth annual meeting of scientific advisors on October
22. Families affected by AP-4 related HSP and interested scientists are invited to attend via Zoom.
Third Annual Meeting of Scientific Advisors and Families
When? November 1-2, 2019
Where? Center for Life Sciences
3 Blackfan Circle
12th floor conference room
Boston, MA 02115
Overview: Cure AP-4 is hosting its third annual meeting of scientific advisors at Boston Children's Hospital on November
1. Families affected by AP-4 related HSP and interested scientists are invited to attend the scientific meeting as well as the family event
planned for November 2. More information coming soon!!
Cure SPG47 Medical Advisory Summit
When? Decmber 20, 2018, 1pm - 5pm
Where? Center for Life Sciences
3 Blackfan Circle
12th floor conference room
Boston, MA 02115
Overview: The second face-to-face meeting of Cure SPG47 Board of Directors, Medical Advisors, industry experts
and families affected by Hereditary Spastic Paraplegia, type 47 was hosted by Boston Children's Hospital
Translational Neuroscience Center on December 20. The purpose of the meeting was to discuss and evaluate
possible treatment options.
Click here for details.
Second Annual Golf Tournament and Auction at The Riverton Country Club
When? September 11, 2018
Where? 1416 Highland Ave
Cinnaminson, NJ 08077
Overview: Riverton Country Club has generously agreed to host a golf tournament to benefit Cure SPG47 on September 11. A
live auction will be held after the tournament. Players are welcome and corporate sponsorships are available. More information coming soon!!
Golf Tournament and Auction at The Riverton Country Club
When? September 12, 2017
Where? 1416 Highland Ave
Cinnaminson, NJ 08077
Overview: Riverton Country Club has generously agreed to host a golf tournament to benefit Cure SPG47 on September 12. A
live auction will be held after the tournament. Players are welcome and corporate sponsorships are available. More information coming soon!!
Click here for details.
Kendra Scott Charity Night
When? July 13, 2017, 6pm - 8pm
Where? 4130 Thistlewood Road
Hatboro, PA 19040
Overview: Join us for a Kendra Gives Back Party. Enjoy sips, sweets and jewels, 20% of the proceeds benefit Cure SPG47.
Click here for details.
Kendra Scott Charity Night
When? July 13, 2017, 6pm - 8pm
Where? Kendra Scott at the Domain
11506 Century Oaks Terrace
Austin, TX 78758
Overview: Join us for a Kendra Gives Back Party. Enjoy sips, sweets and jewels, 20% of the proceeds benefit Cure SPG47.
Click here for details.
Bake Sales & Raffles
When? June 4, 2017, 12:30pm - 4pm
Where? Fit Figures
224 N. Broadway
Salem, NH 03079
Overview: Fit Figures & TAC Admin Resources is hosting a bake sale and raffle
on Sunday June 4th! Come join us to bring awareness and help fund research for Robbie and all
the families. All proceeds from Bake Sale & Raffles will be donated to Cure SPG47.
Click here for details.
Book Launch Party
When? May 13, 2017, 10am - 12pm
Where? Custom House Maritime Museum
25 Water St
Newburyport, MA 01950
Overview: The Adventures
of Piratess Tilly is an award-winning children's picture book series written in haiku by Elizabeth Lorayne
and illustrated in watercolors by Karen Watson. We hope you will come meet the author and help fund a cure
for SPG47. Crafts, lollipops, raffles, and book signings will be available!
Click here for details.
Cure SPG47 Medical Advisory Summit
When? March 7, 2017, 2pm - 5pm
Where? Center for Life Sciences
3 Blackfan Circle
12th floor conference room
Boston, MA 02115
Overview: The first face-to-face meeting of Cure SPG47 Board of Directors, Medical Advisors, industry experts
and families affected by Hereditary Spastic Paraplegia, type 47 was hosted by Boston Children's Hospital
Translational Neuroscience Center on March 7. The purpose of the meeting was to discuss and evaluate
possible treatment options.
Click here for details.